It’s World CML Day. A day to recognize chronic myelogenous leukemia, a blood cancer that affects almost a million people worldwide. The Canadian CML Network has spent the last few days counting down to September 22 by posting stories from people whose lives have been changed by CML. We received many letters – some from people who live with CML others from children, family and friends.
Not everyone wanted to tell their story publicly. Many just wanted to reach out and let us know how much it meant to read about people who were just like them, and facing the same struggles.
There are incredible stories out there of personal challenges and courage. Of people managing devastating side effects, facing disappointment when a transplant doesn’t result in a cure, pulling together as a family when medications stop working.
And then there are the countless stories of joy – babies born despite a CML diagnosis, rapid remissions, the peace of coming to terms with a “new normal.”
As always, hearing from all of you reminded me how wonderful our CML community is, and how the simple act of sharing has the power to change lives in very significant ways. Thank you all for that!
I often get asked how the Canadian CML Network was started, what we do and why community is so important to people living with cancer. So in the spirit of sharing on World CML Day, here is a video of my story.